Monday, November 26, 2012


Survivors look back at their battle for life

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Wednesday, November 21, 2012
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THREE years ago Katie Patterson from Gorseinon was a fit 20-year-old with no previous health problems when she was struck down by acute lymphoblastic leuk- aemia. A bone marrow transplant was needed and her older sister Lowri stepped forward to save the day. Chemotherapy also played its part.
She said: ''After the first two weeks of treatment I was asked if I wanted to be admitted into hospital, I replied with a big emphatic 'No'." Driving to the hospital was exhausting and I spent most of the twenty minute journey with my head in a bowl, but it was still much better than staying in hospital. I found that having to get out of bed, get washed, dressed and out of the house every day really helped me stay active and positive. This I appreciate isn't an option for everyone.
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''By now I was constantly feeling nauseous. I had to focus hard for an hour or so, in order to make myself want to eat. My poor mum would cook a meal she thought I'd like. Then by the time it was ready I'd start feeling sick again. During this month my diet pretty much consisted of lots of water and chicken super noodles. It was the only food I could eat without making me feel ill and the only meal I could really taste. Not even a McDonald's would do the trick.
''It was so hard sometimes to eat when I felt so poorly, I couldn't taste anything for a start.
''However I just kept telling myself I needed food and fluid to survive when I was healthy, so I certainly needed it now. My family were so supportive and constantly reminded me to eat; which I eventually managed to do most days.
''My hair slowly started to fall out. I remember Mum, Lowri and a friend washing it over the bath. So much of it was falling out to be honest I think it was harder for them than me. I'd already accepted this was going to happen so it wasn't too upsetting really.
''Towards the end of the four weeks of chemotherapy I decided to buy a wig. I had two; one was free from the National Health Service (NHS) and the other we bought. I ended up only wearing them once. The day I bought the wigs home I decided I should shave off all my remaining hair. I wasn't devastated; I actually just looked in the mirror and laughed. Looking back it was an unusual situation to say the least.
''My friend Natalie was shaving my hair while Dad was hoovering my head.
''I didn't want to make a mess on the floor. This really makes us all laugh now when we reminisce about my treatment. I didn't feel comfortable wearing the wigs, so I finally decided not to wear them.
Gower mum Kate Beynon underwent 18 months of chemotherapy and radiotherapy and went through the menopause twice to beat cancer.
In the book she says: ''So began the war, a battle that I'd have to fight alone, my only weapons being chemotherapy and radiotherapy. I was now very frightened.
I didn't know anyone who'd had cancer, all I'd heard was stories of people who'd died from it. Books like this one weren't available either and the internet was just a distant dream. Not that I'd recommend anyone believes what they read on the internet either.
Soon dozens of Get Well cards arrived along with bouquets of flowers and endless phone calls from friends and family members, all offering their support.
''Suddenly my life had changed and was so different. I noticed through time some people would cross the street if they saw me walking in their direction, as they simply didn't know what to say. I drew strength from all the cards and good wishes. I received well over a hundred and today they are treasured in a photo album, along with various articles and notes about my story.
''Treatment started with chemotherapy. I was to begin with eight courses followed by three solid weeks of radiotherapy. Then unfortunately I'd have more chemotherapy just to finish off. The staff at the hospital were brilliant, especially the Macmillan nurses who explained what side effects I may get and how best to cope with the treatment.
''The first dose of chemotherapy certainly wasn't what I'd expected. I was fitted with a line into my vein, which was flushed with saline. Then I was given steroids and an anti-nausea drug and then finally the chemotherapy.
''The steroids made me so hungry that I couldn't wait for the lunch trolley to come around. I had to have the chicken dinner which wasn't a wise move on my part really; it's strange the things I've remembered. It took around an hour before the deed was done and the chemotherapy was flowing round my body. On the way home I was still hungry so stopped at my local newsagent and purchased half a pound of liquorice torpedoes, another bad move. The anti-nausea drugs had a shelf life of about three hours. Let's just say I'm now unable to face hospital chicken dinners or liquorice torpedoes without my stomach turning!
The Cancer Survivors Club will have its city launch at Waterstones on December 1 between 2-5pm.
http://www.thisissouthwales.co.uk/Survivors-look-battle-life/story-17380837-detail/story.html

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Thanks, Cancer! 5 Things to Be Grateful For Despite Disease

Posted: 11/20/2012 8:24 am

As high school friends we complained about bad teachers, girls and minimum wage. As young adult cancer patients both facing the greatest challenge of our lives, we realized there are far worse cards to be dealt. Now, removed from the harshest of our experiences with disease, we are happy to share five things that cancer has left us grateful for this holiday season.
1) Relationship Building
Cancer alters the patient's view of existing relationships. People rise up in the face of disaster all the time. In the routine of normalcy you don't always recognize that, but when you're the reason, you take notice. Having a life-threatening illness heightens your awareness of others by exposing their caring to you. Even minor connections may grow into major influences in the face of cancer. Colleagues or acquaintances become friends. Distant relatives become present. Already strong bonds become ironclad. Don't wait for cancer to examine the relationships in your life. Build foundations for new ones and reinforce those you value most.
2) Perspective
Facing mortality at an already impressionable stage of life is without a doubt an overwhelming task. However, it awakens you to see that your decisions and choices in the present are what define you. Dwelling in the past is limiting. Projecting into the future is stifling. When you see firsthand that you can only control what life lets you, you open yourself up to living in the moment. This goes for everyone. Live for now, forgive the past and hold no fear of the future.
3) Altruism
Becoming ill truly showcases the best in mankind. Through the selflessness of loved ones, gifts from friends and the kindness of hospital staff you truly see that we are a collective humanity. However, it is the small acts from total strangers that will really build your faith in us as a species. An anonymous donation, a helpful hand at the store or a warm-hearted individual opening a heavy door goes a long way. While sick, you truly begin to see these gestures in bright, beautiful color. The world needs more of this daily.
4) Perks
While enduring chemotherapy and facing countless restrictions you are forced to entertain yourself. Catching up on all the TV shows that you've telling others you'll eventually get around to viewing (Mad Men, Homeland, Game of Thrones, Breaking Bad, etc.) and discovering new music (Angus & Julia Stone, The Givers, Childish Gambino, etc.) are both positive results of extra free time. Both these activities go well with loving contributions of homemade food. Care packages and quality media certainly aid the battle. Gather your best artillery.
5) Social Media
As hours crawl past, with the sun rising and setting outside your hospital window, you promptly miss participating in the outside world. Fortunately, our platforms for staying connected are better than ever. With Wi-Fi equipped hospitals and doctor's offices it's easy to log-in to chat, Skype, Twitter or Facebook while tracking emails and swapping songs on Spotify. Toss in a few healthy YouTube viewing sessions and track your friends at events on Foursquare or Instagram and you'll feel like a healthy, contributing member of society. Better yet, connecting to others just like you and forming a 'community of quarantine' makes the entire experience relatable. All experiences are now relatable thanks to social media. There is no longer reason to feel alone.
This Thanksgiving, while we indulge in feasts to celebrate all that we have been blessed with, cancer patients worldwide will be struggling with their treatments and searching for the positives in their circumstances. In time they too will come to see that like with anything in life, the attitude and approach they take to each day can make the worst of times better. Perhaps cancer teaches us what we have known, but often need a reminder of: that gratitude has powerful effects and there is always a silver-lining if you choose to see it.
Jason Decent and Jeff Tomczek grew up together as classmates & friends in West Bend, Wisconsin. Jason was diagnosed with an operable brain tumor in December of 2010. A lawyer, he lives in Los Angeles with his wife Julie. In June 2011 Jeff was told he had a treatable form of leukemia. A marketing consultant and writer, he lives in New York City and can be followed on Twitter @C2bseen. Now both without signs of disease, the two are thankful for each day. They still accept contributions of homemade food with no sign of stopping anytime soon.
http://www.huffingtonpost.com/jeff-tomczek/cancer-young-adults_b_2156719.html?ncid=edlinkusaolp00000003

http://www.magcloud.com/browse/issue/257729


Survivors:

SURVIVORS - Premiere Issue

Survivors

Published by:
Michael Colanero
Published:
11/13/2011
Size:
Standard8.25" x 10.75"
90 pagesPerfect-bound
Category:
Lifestyle
Tags:
art, awareness,BCABPP, body, breast,cancer, empower,Fighter, fundraising,healing, health, hope,Inspiration, Natural,nude, paint,photography, stories,survivor, warrior
a magazine for Inspiration, Hope, Healing and more Featuring survivor Gillian Brill and her portrait "Phoenix Rising" This is our Premiere Issue and also our complementary FREE digital download. Please share it with anyone who may benefit.
Buy in Print: $24.95
Free Digital with Print Purchase!
Buy Digital: FreeRead Now

Wednesday, November 21, 2012



ALICE'S BUCKET LIST...MUST READ


Alice’s Bucket List

Recently, I came across the most amazing, most inspiring, most incredible blog, Alice’s Bucket List.