Happy Thanksgiving from Susan

  Wishing everyone a very Happy Thanksgiving! I love this holiday! Always filled with family, good stories, good food and very good times. I...

Friday, January 28, 2011

Finding someone to share your experience


Breast Cancer Patients Find Buddies

January 28, 2011 9:36 AM
(Source: CBS4)
(Source: CBS4)
MIAMI (CBS4) — If you go through an illness, a friend or family member may say they know how you feel.
But many breast cancer patients will tell you the only people who really know how they feel are other breast cancer patients
In today’s Komen for the Cure – a program offered at Baptist Hospital brings breast cancer patients together so they can help each other.
“A lot of laughing and joking and hugging.”
That’s how Marilyn Van Houten, a breast cancer patient, described her experience at the hospital.
That’s because in 2005 she joined Your Bosom Buddies Support Group.
She had triple negative breast cancer which makes her treatment more difficult.
“I felt like I needed all the support I could get and then some.”
Every newly-diagnosed woman who joins gets a buddie bag and a mentor.
Marilyn became a mentor so she could return the favor.
Ellie Orosa was married and had an adult daughter when she found out she had breast cancer.
She knew she needed some guidance.
“I wasn’t thinking logically. I couldn’t really concentrate on anything.”
So she reached out to the program.
“I went there feeling kind of like, oh man, this is going to be depressing,” admitted Ellie.
Instead she found Marilyn.
“I was very fortunate to find a friend, a sister, somebody that I knew had my back.”
Ellie worried her life would never be the same.
“It is the same. And in some ways its better, because I made friendships that I know are going to last a lifetime.”
Find out more about a buddie for your mentoring program or the Bosom Buddies Support Group here.
For more information about a buddie for you breast cancer mentor program clickhere.

Thursday, January 27, 2011

Eating Broccoli is a Good Thing!



Broccoli. Scientists are reporting discovery of a potential biochemical basis for the apparent cancer-fighting ability of broccoli and its veggie cousins. They found for the first time that certain substances in the vegetables appear to target and block a defective gene associated with cancer. (Credit: iStockphoto)

Discovery of a Biochemical Basis for Broccoli's Cancer-Fighting Ability

ScienceDaily (Jan. 26, 2011) — Scientists are reporting discovery of a potential biochemical basis for the apparent cancer-fighting ability of broccoli and its veggie cousins. They found for the first time that certain substances in the vegetables appear to target and block a defective gene associated with cancer.
Their report, which could lead to new strategies for preventing and treating cancer, appears in ACS' Journal of Medicinal Chemistry.
Fung-Lung Chung and colleagues showed in previous experiments that substances called isothiocyanates (or ITCs) -- found in broccoli, cauliflower, watercress, and other cruciferous vegetables -- appear to stop the growth of cancer. But nobody knew exactly how these substances work, a key to developing improved strategies for fighting cancer in humans. The tumor suppressor gene p53 appears to play a key role in keeping cells healthy and preventing them from starting the abnormal growth that is a hallmark of cancer. When mutated, p53 does not offer that protection, and those mutations occur in half of all human cancers. ITCs might work by targeting this gene, the report suggests.
The scientists studied the effects of certain naturally-occurring ITCs on a variety of cancer cells, including lung, breast and colon cancer, with and without the defective tumor suppressor gene. They found that ITCs are capable of removing the defective p53 protein but apparently leave the normal one alone. Drugs based on natural or custom-engineered ITCs could improve the effectiveness of current cancer treatments or lead to new strategies for treating and preventing cancer.
The authors acknowledged funding from the Ruth L. Kirschstein National Research Service Award and a grant from the National Cancer Institute of the National Institutes of Health.

Wednesday, January 26, 2011

Living Beyond Breast Cancer (lbbc.org)

You are exactly where you are supposed to be

By livingbeyondbc
This entry was written by Jeanne Egan who is looking forward to serving as co-chair for LBBC’s annual gala in November:
As 2010 closes and we begin a new year, I am reminded of something my yoga instructor often says, “you are exactly where you are supposed to be at this very moment.”  This year I feel this is particularly true. Prior to my diagnosis with breast cancer three years ago, I was content with being a busy mother of two young children. I occasionally toyed with the prospect of returning to the business world as a marketing professional.  In my former life, I managed marketing events for a major corporation.  It was exciting work that I always thought I would step back into once my children were in school full time.  But along with my breast cancer diagnosis came a change in my perspective.
living beyond breast cancer, butterfly ball, gala, east falls
Jeanne enjoys quality time with her family over the holidays.

“If I am going to work, it needs to mean something,” I told my husband at the beginning of last year.  I had been blogging independently about my breast cancer experience over the prior year but wanted to do more.  At yoga one day, a friend of mine mentioned blogging for LBBC. 
“Sure that sounds great.  It seems like a great way to get more involved.”  I happily replied when LBBC called to see if I was interested.  My guest blog was posted and I felt grateful for the opportunity to reach out to other women affected by breast cancer.  But I had a nagging feeling that I wanted to do more.    So I put a team together for the Yoga on the Steps event.  Doing yoga that cold morning last May on the steps of the Philadelphia Art Museum struck a chord with me and suddenly I felt a strong connection to LBBC.  Again, I felt compelled to do more.   I e-mailed LBBC’s CEO and Special Events Manager to see what else I could do for the organization.
“How about Co-Chairing our 20th Anniversary Gala?” They quickly asked.
“Uh…..well, I am not sure that I am ready to take on that role but I certainly will think about it.”  I replied, startled.
Well, I have to say, that wasn’t the job that I had anticipated they would ask me to do.  I thought that maybe they would need someone to do a little bit of volunteer work at the office or help with special events.  I was thinking baby steps and they were thinking giant steps.  Were we on the same page?  Before I committed, I wanted to think about it long and hard.  I went home and that night muddled it over with my husband and a couple of friends.
I looked at the pros and cons of taking on such an active role in the event.  In the end, all I could see were the pros.  It is an honor to be asked to co-chair such an important event for LBBC and it will give me the opportunity to be more involved and give back.  The other exciting thing is the change in venue for this year’s gala.  The gala is going to be in a wonderful space in East Falls, which is open and airy with a vibrant feeling.  Upon viewing the space, all I could say was “WOW.”  It is spectacular.
As we move into the planning phase for the event I realize that there is going to be a great deal of work ahead.  Instead of finding this daunting, I am energized by it.  There is nothing more exciting than creating something new and entirely different – and all for a good cause.
As I reflect on the events that have brought me to the exact place where I am right now, I feel invigorated at the prospect of 2011.  I am exactly where I am supposed to be. 
Are you where you are supposed to be? How has your breast cancer diagnosis been instrumental in helping you to pay it forward in the breast cancer community? We want to hear from you! Comment here or on our Facebook page.

Yoga Helps You Cope


Hot 'n Healthy: Exercise helps breast cancer survivor cope

Posted: January 25, 2011 - 12:20am  |  Updated: January 25, 2011 - 8:02am
Editor's note: Mary Ellen Mulligan is living proof that exercise can renew and restore one's mental and emotional states. In her words, Mulligan describes how yoga helped her cope with breast cancer.
My name is Mary Ellen Mulligan. Following my diagnosis of breast cancer in January of 2009, I chose to have a bilateral mastectomy and immediate reconstruction. My oncologist then recommended the "standard of care" chemotherapy regimen for my breast cancer.
Fortunately for me, I discovered a cancer support yoga class offered by Cathy Baxter shortly after I began chemotherapy. Cathy's class allowed me to feel a sense of well-being and strength, calm amidst the storm. I looked forward to yoga class and no matter how badly I felt upon entering each weekly session, I always left feeling invigorated and refreshed, taller and stronger, and at peace with my cancer diagnosis and treatment plan.
As a cancer survivor, Cathy knew what it was like to go through treatment. Her calming demeanor, knowledge of yoga, genuine compassion and willingness to help those going through cancer treatment provided the strength and support for me to overcome the challenges of breast cancer. Her positive energy and calm spirit were always contagious.
The gentle stretches, twists, poses and balances all helped to soften the worse effects of the toxic chemicals that were infused into my body each week. But it was actually the breathing exercises and awareness of breath that ultimately played the biggest part in my healing
During yoga class, we practiced deep breathing, relaxing and letting go. With every inhale, I took in positive energy and new air. My mind and body were able to sink deeper into various poses, relaxing and clearing my mind. With every exhale I eliminated stress, anxiety and chemical toxins.
I believe chemotherapy can cause a general feeling of sadness, and I experienced this especially during the initial chemotherapy treatments. Yoga helped me to stay balanced and my new relationship with breath stays with me constantly. No matter how busy I am; whether I am sitting, lying or standing; at work, at home or outside, I always utilize the restorative breathing techniques Cathy helped me to develop through my yoga practice.
Through the practice of yoga, I began to acknowledge and appreciate the importance of breath to life.
One of my favorite yoga poses is Legs Up the Wall, a pose used during savasana, which is usually saved for last. The pose is restorative and always very relaxing.
Another one of my favorite poses is Modified Bridge Pose at the Wall

Legs Up the Wall Pose (Viparti Karani)
Have a blanket nearby and start by sitting with your left side against a wall and your right hand on the floor.
Step 1. Bring your weight onto your right hip and hand and pivot your legs up the wall as you bring your right side and eventually your back down to the ground. Once you are on your back, wiggle closer to the wall so your rear is almost touching it and let the backs of the legs rest on the wall. Next, lift your head to look down at your body to ensure it is straight and perpendicular to the wall.
Step 2. Relax your head. If you notice your head tips back when you lie down, place a blanket or small pillow underneath your head until the front and back of your neck are equal in length. Relax the arms into any comfortable position preferably lower than the heart: this signals to the heart that it is time to relax.

Modified Bridge Pose at the Wall (Variation of Setu Bandha Sarvangasana)
-- Starting from Legs up the Wall Pose, place the soles of your feet on the wall with your shins parallel to the ground.
-- Bring your arms down by your side with the palms facing down. Once you are settled, flatten the natural arch of your low back into the ground and notice how this scoops your pelvis and allows the tailbone to be the highest point on your spine.
-- Maintain this scoop as you begin to lift each vertebrae, starting at the bottom of your spine and working your way up. As you rise, continue to press down through the backs of your shoulders and the back of your head.
-- Peel up one vertebra at a time as you inhale and lower one vertebra at a time as you exhale. Use the breath to make this pose as effortless as possible.

How long: When in Legs up the Wall, breathe, surrender and relax in the pose. Then transition into the Modified Bridge Pose at the Wall. Lift and lower between 5-10 times. Return to Legs Up the Wall Pose and hold for as long as it feels comfortable and easeful.
Information
Contact Cathy Baxter at cathy@twistedwarrior.com or go to her website at TwistedWarrior.com

Monday, January 24, 2011

After Breast Cancer...Learning to Live with your Body


Posted by Vanessa on 11th January 2011

Making Peace With Your Body After Cancer

This summer, while visiting the local outdoor swimming pool, I saw a woman in the corner doingthe move.  I was distracted, concentrating on getting my kid and her friend to stop horsing around and get changed.  But this motion seemed so familiar; I did a subtle double take. I think I stared because I usually see the older ladies dressing quite confidently and comfortably in this part of the changing area of the pool.  They have made friends with their bodies (or have at least declared peace). It’s the pre-teens with their pencil thin legs and perky… uh, elbows who always seem to squeal and run for cover.
But there was this venerable older lady doing my move.  Facing the wall, she’s lowered her head and draped a towel over her back as she changes. I know it’s not modesty motivating her because she doesn’t bother to cover her bottom, just (very consciously) her top.  And then as she carefully shifted the towel away before her bra was fully closed, I saw it – a small pink line beginning just under her arm. She had reconstructed breasts. I wanted to dash over and show her my scar exclaiming, “hey, look I got one of those too!” But that would certainly be awkward – and to what end? So I propelled a silent greeting, some positive thoughts with good wishes and go on my way.
I’d like to say that it seems like only yesterday that I was having surgery for breast cancer, but it really feels like ancient history to me now. I was diagnosed at age 28 in 2002. Time has healed my wounds, faded my scars, and time has made a reconstructed left breast feel pretty normal to me. I can honestly say that I hardly ever think about cancer anymore. But it took a really long time and a lot of work to get to this place.
In Sherri Magee and Kathy Scalzo’s book, “Picking up the Pieces, Moving Forward after Surviving Cancer“, they talk about how the side effects of cancer are not only physical, but emotional and and spiritual as well. “Cancer shatters a lot of illusions,” Kathy says. “The illusion of health, the illusion of having control over their lives. Survivors live on a roller coaster of emotions because right next to the intense gratitude for life sits fear and anxiety, even depression because you are not who you were.1
They write that many survivors experience a dissociation from their physical selves after cancer, and talk about how it’s important to rediscover your body and to learn to live with it and care for it again. Saying that reclaiming your body and adapting to your new physical self are essential to the recovery process.
We live in a culture that worships physical beauty and perfection. Cancer represents our worst fears of our bodies becoming less than whole, not measuring up to societal norms. There are an infinite number of body shapes, sizes, and features, yet society tries to convince us that only a few of them are desirable. Before cancer, you may have focused on your bodyʼs outward appearance, relating to yourself from the perspective of how you looked rather than how you felt. Now you’ll be turning that perspective inside out and looking at your body differently.” 2
When I had the mastectomy, my worst fear was to wake up without a breast, so I requested an immediate reconstruction. A latissimus dorsi procedure was recommended for by body type.  This surgery involved moving a flap of skin and muscle from my back to fill in and support a small implant. But I had some rotten luck with scar tissue forming a capsular contracture in the weeks following my surgery and I eventually did have to have my implant removed for about a year to allow the reactive area to calm down before attempting another implant leaving me with an odd lumpy void on my left side for at least one bikini season.
At the time it felt like I was having a mastectomy all over again. Over the next few days the breast area filled with fluid and the resulting shape looked better than an implant! It was a perfect tender teardrop shape… and then the fluid reabsorbed and I was left with an odd ripple because of the latissimus dorsi muscle. I began to get terribly annoyed at everything around me: the photos in fashion magazines, the choices of bras and halter tops, the girls at the beach, my itchy prothesis, and the terror I felt about being “ugly” and “broken. I become a little timid with my physical self, freaked out that my divot would show from certain angles. I was worried about how I looked and I was angry at my body. So I pouted for a good long while.
Looking back at it now, I feel that my strong, scary reaction was probably a normal part of the recovery process and something I had to get through in order to move past the pain. The sadness and anger helped me understand what was happening to me – helped me learn where my physical self ended and my true self began.  This is not at all to say that my body became less important! In fact, one of my main pursuits became proving to myself that not only did I look acceptable, but that my body was still trustworthy and lovable.
Reclaiming my body was a multi-stage process. One of the most healing experiences was when I joined a group of breast cancer survivors to model for 2005 edition of the Breast of Canada calendar (month of October). The six of us had a blast in the photographer’s studio feeling a strong sense of belonging and acceptance. I told a TV reporter who was doing a story about us that doing this made me feel proud of my scars. As proud as I was, as much as I wanted to show the world that it was OK about looking like this, I still hid myself in the changing rooms at the pool.
In the years that followed my mastectomy, I experienced a strong need to have my body serve and obey me. I felt betrayed by it. No matter how much meditation or relaxation therapy I did, I still felt like I wanted to challenge and dominate my body – show it who was boss! When the medication I was taking caused me to gain weight, I was lower than ever. But I didn’t give up on the mission.  I worked out regularly, and did things that made me feel connected to the breast cancer world like walking a 60k fundraiser and entering myself and two friends as a breast cancer relay team for the a sprint triathlon.
But I still felt really sad and angry.
As an artist, I found myself creating dozens of plaster casts of my torso and painting them for an art project I called Cancer Xancer. I had four more surgeries to complete my reconstruction and carefully documented the process with art and journaling. The nipple was yet to be completed and tattooed when it happened… I stopped minding. At first I just felt busy, occupied with going back to work, busy with a young child. Then it slipped my mind. Then one day I was showering in the change room at the pool (training to do the same sprint triathlon on my own) when I realized I wasn’t covering or cowering.  I simply was.
I’m not sure when I decided to accept my body the way it was but it felt good when I realized it had happened. And it took a looooooong time. This spring I competed the sprint triathlon in Delta, BC on my own.  It was a 700m swim, 20km bike ride and 5k run… and it felt AMAZING to complete!
~Vanessa
(From the Fall 2010 edition CBCN Network News)
This site has wonderful stories by women who have experienced Breast Cancer and learning to live with their new norm.

Thursday, January 20, 2011

Social Network Helps Breast Cancer Patients

Vanderbilt study finds breast cancer patients with strong social network live longer

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Breast cancer patients who have a strong social support system in the first year after diagnosis are less likely to die or have a recurrence of cancer, according to new research from Vanderbilt-Ingram Cancer Center (VICC) and the Shanghai Institute of Preventive Medicine. The study, led by first author Meira Epplein, Ph.D., assistant professor of Medicine at VICC, was published in a recent edition of the Journal of Clinical Oncology.
Patients in the study were enrolled in the Shanghai Breast Cancer Survivor Study, a large, population-based review of female breast cancer survivors in China, which Vanderbilt UniversityMedical Center and the Shanghai Institute of Preventive Medicine have carried out since 2002 under the leadership of principal investigator Xiao Ou Shu, M.D., Ph.D., professor of Medicine at VICC, and senior author of the study.

From 2002 to 2004, a total of 2,230 breast cancer survivors completed a quality of life survey six months after diagnosis and a majority responded to a follow-up survey 36 months after diagnosis. The women were asked about physical issues like sleep, eating and pain, psychological well-being, social support and material well-being. The answers were converted to an overall quality of life score.

During a median follow-up of 4.8 years after the initial quality of life assessment, the investigators documented participants who had died or been diagnosed with a cancer recurrence.

Six months after diagnosis, only greater social well-being was significantly associated with a decreased risk of dying or having a cancer recurrence. Compared to women with the lowest scores, women who scored highest on the social well-being quality of life scale had a 48 percent reduction in their risk of a cancer recurrence and a 38 percent reduction in the risk of death.

Emotional support was the strongest predictor of cancer recurrence. Specifically, women reporting the highest satisfaction with marriage and family had a 43 percent risk reduction, while those with strong social support had a 40 percent risk reduction and those with favorable interpersonal relationships had a 35 percent risk reduction.

“We found that social well-being in the first year after cancer diagnosis is an important prognostic factor for breast cancer recurrence or death,” said Epplein. “This suggests that the opportunity exists for the design of treatment interventions to maintain or enhance social support soon after diagnosis to improve disease outcomes.”

While a strong social support network influenced cancer recurrence and mortality during the first year, the association tapered off and was no longer statistically significant by the third year after diagnosis. This may be related to a smaller sample size of patients who answered thequestionnaire, or other factors beyond quality of life that take precedence in later years.

“Our research supports previous studies that found a benefit for breast cancer patients who have a meaningful emotional support network,” said Epplein. “These results suggest that therapeutic interventions may be useful because social well-being is potentially modifiable.”

The study was supported by grants from the U.S. Department of Defense Breast Cancer Research Program and the National Cancer Institute.
http://www.healthcanal.com/cancers/13954-Vanderbilt-study-finds-breast-cancer-patients-with-strong-social-network-live-longer.html